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This service has 1 current healthcare service locations.
Neurogenetics Clinic   at
Alberta Children's Hospital
This service accepts referrals via its central access office
Specialty: Genetics
Connect Care Department: CGY ACH NEUROGENETICS
Estimated time to routine appointment: Within 18 months
Alberta Health Services - Calgary Zone
REFERRAL PROCESS
This service only accepts referral via Southern Alberta Clinical and Metabolic Genetics Services - Central Access and Triage office.
This page only displays patient resources and appointment navigation information for this service.
To make a referral, please refer to the Central Access Triage profile.
This service only accepts referral via Southern Alberta Clinical and Metabolic Genetics Services - Central Access and Triage office.
This page only displays patient resources and appointment navigation information for this service.
To make a referral, please refer to the Central Access Triage profile.
SERVICE DESCRIPTION
Provides care for people and their families who have, or who are at risk for neurogenetic conditions.Services include assessment, diagnosis and genetic counselling, and screening and management recommendations.
Provides care for people and their families who have, or who are at risk for neurogenetic conditions.Services include assessment, diagnosis and genetic counselling, and screening and management recommendations.
COMMUNICATION PROCESS
  • Referral receipt to referring source within 7 days.
  • Acceptance via appointment details or wait list status letter to referring source and patient within 14 days.
  • Wait list status update every 90 days.
  • Appointment outcome to referral source within 30 days.
ADDITIONAL SERVICE DETAILS
If your patient is admitted and will remain admitted, please consider calling the inpatient genetics consult service.
 
Please refer pregnant patients to the Prenatal Genetics Clinic.
 
Referrals are not accepted for a family history of a neurogenetic condition with no confirmed genetic testing or supportive pathology of an affected individual (with few exceptions – please contact our clinic with questions). 
 
Referrals to Neurogenetics due to undiagnosed neurological symptoms must be seen by neurology or a relevant subspeciality prior to referral acceptance in Genetics. Please note that patients affected with neurological conditions can often access genetic testing through their neurologist.
  
Genetic testing for neurodegenerative conditions in asymptomatic individuals, such as Huntington disease, genetic CJD, familial ALS, CADASIL, and familial dementia, is restricted to Clinical Genetics and follows a four-step predictive testing protocol. Patients can self-refer or be referred by a clinician. Referral acceptance requires confirmed genetic test result in a family member (with very few exceptions).   

Patients who can receive optimized service through another clinic, such as the Prenatal Genetic Clinic or other specialty clinic will be offered appointments through those clinics instead.

Please encourage your patient to visit the Frequently Asked Questions at: www.ahs.ca/genetics and to review general information about genetics and their health at: MyHealth.Alberta.ca - Genetics.
If your patient is admitted and will remain admitted, please consider calling the inpatient genetics consult service.
 
Please refer pregnant patients to the Prenatal Genetics Clinic.
 
Referrals are not accepted for a family history of a neurogenetic condition with no confirmed genetic testing or supportive pathology of an affected individual (with few exceptions – please contact our clinic with questions). 
 
Referrals to Neurogenetics due to undiagnosed neurological symptoms must be seen by neurology or a relevant subspeciality prior to referral acceptance in Genetics. Please note that patients affected with neurological conditions can often access genetic testing through their neurologist.
  
Genetic testing for neurodegenerative conditions in asymptomatic individuals, such as Huntington disease, genetic CJD, familial ALS, CADASIL, and familial dementia, is restricted to Clinical Genetics and follows a four-step predictive testing protocol. Patients can self-refer or be referred by a clinician. Referral acceptance requires confirmed genetic test result in a family member (with very few exceptions).   

Patients who can receive optimized service through another clinic, such as the Prenatal Genetic Clinic or other specialty clinic will be offered appointments through those clinics instead.

Please encourage your patient to visit the Frequently Asked Questions at: www.ahs.ca/genetics and to review general information about genetics and their health at: MyHealth.Alberta.ca - Genetics.
 
PATIENT APPOINTMENT INFORMATION
 
MISSED APPOINTMENT GUIDELINES
A new referral is required if there are 2 missed appointments.
A new referral is required if there are 2 missed appointments.
 
HOURS OF OPERATION
Monday: 8:00 am - 4:00 pm
Tuesday: 8:00 am - 4:00 pm
Wednesday: 8:00 am - 4:00 pm
Thursday: 8:00 am - 4:00 pm
Friday: 8:00 am - 4:00 pm
   
 
ADDRESS
Dr. R. Brian Lowry Genetics Clinic
28 Oki Drive NW
Calgary Alberta
T3B 6A8
PATIENT APPOINTMENT INSTRUCTIONS
  • Bring your Alberta health care card and a piece of government issued photo ID.
  • Check in at reception 15 minutes prior to your scheduled appointment time.
  • You may bring a family member or significant other during your consultation.
  • Please let us know if you need a medical interpreter and we can schedule one for your appointment.
  • Bring your Alberta health care card and a piece of government issued photo ID.
  • Check in at reception 15 minutes prior to your scheduled appointment time.
  • You may bring a family member or significant other during your consultation.
  • Please let us know if you need a medical interpreter and we can schedule one for your appointment.
 
DIRECTIONS
Alberta Children's Hospital is located on the corner of 24 Ave NW and West Campus Drive NW. Clinical Genetics is located on the 3rd Floor.
Alberta Children's Hospital is located on the corner of 24 Ave NW and West Campus Drive NW. Clinical Genetics is located on the 3rd Floor.
 
WHEELCHAIR ACCESSIBILITY
Yes

This facility is wheelchair accessible and has an elevator on site

 
PARKING INSTRUCTIONS
There is paid public parking available, with both surface and underground parking.
There is paid public parking available, with both surface and underground parking.
 
VIRTUAL APPOINTMENT INFORMATION
Appointments may occur in-person, virtually or by phone
Appointments may occur in-person, virtually or by phone
 
 

The primary purpose of the All Locations list is to let the user easily access any location of a healthcare service without going back to the main search screen.

The locations listed have 3 background colors:
  • Green means the healthcare service@location has referral information attached to it.
  • Brown means the healthcare service@location never had referral information attached to it, or it has unpublished referral information.
  • Red means
    • IA changed the healthcare service@location's status to something other than Current
    • It was deleted if it is an ARD healthcare service@location.
Green  and Brown are always at the top of the list. These are the Healthcare Service@Locations with the status of Current.
The Red list at the bottom consists of non-current Healthcare Service@locations that once had Published referral information in the ARD.
If the referral information was never published in ARD the Healthcare Service@location will not show in the Red list.

The secondary purpose of the All Locations list is to allow ARD Administrators to recover (copy) referral information from the non-current Healthcare Service@Locations to ones that are current.

Common Scenario:
A Healthcare Service moves from one location to another. In this case the IA Healthcare Service@Location record will be made defunct (non-current) and a new Healthcare Service@Location record will be created with a current status. In this scenario the captured referral guidelines in ARD can become "orphaned" as they are not attached to any current IA healthcare service.

Categories of non-current or orphaned referral guidelines: INDIVIDUAL and COMMON.
The REFERRAL GUIDELINES section of the profile has the prefix INDIVIDUAL or COMMON to help you choose the method below when transferring referral guidelines from a non-current Healthcare Service@Location to a current healthcare service@location.

Individual referral process
  1. Click on a non-current (Red) Healthcare Service@Location at the bottom of the All Locations list.
  2. The non-current referral info is displayed with the link Copy this Referral Process to another Healthcare Service@Location link on the upper right hand corner. Click on the copy link.
  3. Choose a current location (Green or Brown) from the All Locations list. This will be the Healthcare Service@Location you are pasting the referral info into.
  4. The system will display the Edit Referral Info screen populated with the referral info from the non-current Healthcare Service@Location you viewed in the first step.
  5. Click Save and the referral info is transferred from the non-current Healthcare Service@Location to the current one.
  6. Repeat these steps for each Healthcare Service@Location that needs attention.

Common referral process - 2 sub cases.
Case 1: At least 1 current Healthcare Service@Location with common referral info is with current status for this healthcare service; One or more Healthcare Healthcare Service@Locations where replaced by new one.
  1. Click on any current Healthcare Service@Location whether it has referral info (Green) or not (Brown).
  2. The healthcare service location opens in the Edit Referral Info screen populated with the current common referral info.
  3. Save it. 
  4. All locations will be updated with the common referral information, including all the locations that don't have referral info yet (Brown). The non-current referrals (Red) will also be updated.
Case 2:  All Healthcare Healthcare Service@Locations for a healthcare service are set to a non-current status and replaced by new ones. In this case there is no current additional referral info to copy from, so the only alternative is to pick up the non-current common referral process (Red). Follow the steps described in the section Individual Referral Process above to copy/paste the non-current common referral info to the current healthcare service locations.
Generally we want to replicate current common referral info to new or replaced healthcare service locations. We only resort to copying non-current common referral info if there is no other option.

Remember: Some fields can be location specific with the common referral process:
Parking Instructions, Directions, Parking Map, Wait Time, Referral Phone or Referral Fax.
To update these items you have to edit each Healthcare Service@Location separately.

ADDITONAL NOTES:
  • The info icon after the All Locations drop down will be visible to ARD Administrators.
  • The system doesn't allow you to copy referral information from one non-current Healthcare Service@Location to another.

 

V6.5