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This healthcare service has 1 current healthcare service locations.
Pediatric Neuromuscular Disease Clinic   at
Glenrose Rehabilitation Hospital
Specialty: Pediatric Neurology
Connect Care Department: EDM GRH PED NEUROMUSCULAR
Estimated time to routine appointment: Within 3 months
Alberta Health Services - Edmonton Zone
SERVICE DESCRIPTION
The Pediatric Neuromuscular Disease Clinic helps kids with muscle and nerve problems, called neuromuscular diseases, and supports their families.The clinic offers:
  • advice, emotional support, and connecting families with other resources
  • therapy to help kids strengthen muscles and may suggest braces for better movement and comfort
  • help for families to get special equipment for daily activities
  • teaching for the child and family about the disease, how it affects the child, and how everyone can help the child succeed
The Pediatric Neuromuscular Disease Clinic helps kids with muscle and nerve problems, called neuromuscular diseases, and supports their families.The clinic offers:
  • advice, emotional support, and connecting families with other resources
  • therapy to help kids strengthen muscles and may suggest braces for better movement and comfort
  • help for families to get special equipment for daily activities
  • teaching for the child and family about the disease, how it affects the child, and how everyone can help the child succeed
ELIGIBILITY REQUIREMENTS

Pediatric patients up to and including 17 years of age, (but not 18 years of age) with a neuromuscular disease including:

  • Charcot-Marie-Tooth disease
  • Friedrich's Ataxia
  • Limb Girdle Muscular Dystrophy
  • Muscular dystrophy
  • Myopathy
  • Spinal muscular atrophy

Please Note: There are very specific physicians that should refer to NMDC.  

Pediatric patients up to and including 17 years of age, (but not 18 years of age) with a neuromuscular disease including:

  • Charcot-Marie-Tooth disease
  • Friedrich's Ataxia
  • Limb Girdle Muscular Dystrophy
  • Muscular dystrophy
  • Myopathy
  • Spinal muscular atrophy

Please Note: There are very specific physicians that should refer to NMDC.  

Referral instructions for primary care, community care, private
providers etc. who do not send referrals via Connect Care. 
REFERRAL PROCESS - FOR NON-CONNECT CARE USERS
This is not a new consult diagnostic clinic.  New consults should instead be directed to the Pediatric Neurology Clinic at the Stollery Children’s Hospital or to the Glenrose Pediatric Rehabilitation Medicine Consultation Clinic.
This is not a new consult diagnostic clinic.  New consults should instead be directed to the Pediatric Neurology Clinic at the Stollery Children’s Hospital or to the Glenrose Pediatric Rehabilitation Medicine Consultation Clinic.
REFERRAL PROCESS - FOR CONNECT CARE USERS
Send an Internal Referral using the Ambulatory Referral Order to Pediatric Neurology, type EDM GRH PED NEUROMUSCULAR in the “To Department” section and complete order.
  • Referred pediatric patients will already have a diagnosed chronic nerve/muscle disease, and require non-acute multidisciplinary services (primarily physiatry and physiotherapy).  This clinic provides neuromuscular disease surveillance, assessment of function, and access to rehabilitation therapy.
  • The patient should preferably be assessed by a pediatric neurologist or Glenrose pediatric physiatrist or developmental pediatrician, who will then refer to the Pediatric Neuromuscular Disease Clinic (if appropriate). 
  • This is not a new consult diagnostic clinic.  New consults should instead be directed to the Pediatric Neurology Clinic at the Stollery Children’s Hospital or to the Glenrose Pediatric Rehabilitation Medicine Consultation Clinic.
Send an Internal Referral using the Ambulatory Referral Order to Pediatric Neurology, type EDM GRH PED NEUROMUSCULAR in the “To Department” section and complete order.
  • Referred pediatric patients will already have a diagnosed chronic nerve/muscle disease, and require non-acute multidisciplinary services (primarily physiatry and physiotherapy).  This clinic provides neuromuscular disease surveillance, assessment of function, and access to rehabilitation therapy.
  • The patient should preferably be assessed by a pediatric neurologist or Glenrose pediatric physiatrist or developmental pediatrician, who will then refer to the Pediatric Neuromuscular Disease Clinic (if appropriate). 
  • This is not a new consult diagnostic clinic.  New consults should instead be directed to the Pediatric Neurology Clinic at the Stollery Children’s Hospital or to the Glenrose Pediatric Rehabilitation Medicine Consultation Clinic.
ADDITIONAL SERVICE DETAILS
NOTE:  Estimated appointment wait time is 3-4 months.
NOTE:  Estimated appointment wait time is 3-4 months.
COMMUNICATION PROCESS
  • Referral receipt to referring source within 7 days.
  • Acceptance via appointment details or wait list status letter to referring source and patient within 14 days.
  • Wait list status update every 90 days.
  • Appointment outcome to referral source within 30 days.
 
PHONE
780-735-8276
780-735-8276 (Referrals)
FAX
780-735-6104
780-735-6104 (Referral Fax)
REFERRAL PHONE
780-735-8276
REFERRAL FAX
780-735-6104
REFERRAL FORM
CLICK + TO VIEW REFERRAL GUIDELINES
+-
Routine Reason for Referral
Access Targets convey the clinically appropriate timeframe patients should be seen within, by reason for referral and priority level.
Access Target
Required Information/Investigations
Investigation Timing
Additional Details
+-
Education and training activity
< 6 Months
Medication List (dose, frequency, route)
 
Within 1 month
Past medical history
 
Within 1 month
Investigations
 
Within 3-4 months
+-
Equipment monitoring
< 6 Months
Medication List (dose, frequency, route)
 
Within 1 month
Past medical history
 
Within 1 month
Investigations
 
Within 3 months
+-
Orthotic bracing
< 6 Months
Medication List (dose, frequency, route)
 
Within 1 month
Past medical history
 
Within 1 month
Investigations
 
Within 3-4 months
+-
Rehabilitation therapy
< 6 Months
Medication List (dose, frequency, route)
 
Within 1 month
Past medical history
 
Within 1 month
Investigations
 
Within 3-4 months
PATIENT APPOINTMENT INFORMATION
Email
Print
 
MISSED APPOINTMENT GUIDELINES
If you are unable to attend a scheduled appointment, please contact the clinic a minimum of 48 hours in advance to reschedule.  Patients who miss multiple appointments without notifying the clinic may require a new referral.
If you are unable to attend a scheduled appointment, please contact the clinic a minimum of 48 hours in advance to reschedule.  Patients who miss multiple appointments without notifying the clinic may require a new referral.
 
HOURS OF OPERATION
Monday: 8:00 am - 4:30 pm
Tuesday:
Wednesday: 12:00 pm - 4:30 pm
Thursday:
Friday:
Description:
Clinics run during the:
  • 1st Wednesday of the month in the afternoon
  • 3rd Monday of the month - all day
  • 4th Monday of the month in the afternoon
   
 
ADDRESS
10230 111 Avenue NW
Edmonton Alberta
T5G 0B7
PATIENT APPOINTMENT INSTRUCTIONS
  • Bring your Alberta Health Care card and a piece of government issued photo ID.
  • Check in at reception 15 minutes prior to your scheduled appointment time.
  • You may bring a family member or significant other during your consultation.
  • Bring your Alberta Health Care card and a piece of government issued photo ID.
  • Check in at reception 15 minutes prior to your scheduled appointment time.
  • You may bring a family member or significant other during your consultation.
 
DIRECTIONS
Please report to the Glenrose Rehabilitation Hospital 102nd Street entrance (10230 - 111 Avenue) and check in at the Front Desk/Admitting.
Please report to the Glenrose Rehabilitation Hospital 102nd Street entrance (10230 - 111 Avenue) and check in at the Front Desk/Admitting.
 
PHONE
780-735-8276
780-735-8276 (Referrals)
 
PARKING INSTRUCTIONS
Disabled and public parking is available in the underground parkade and at designated surface stalls.  Pay per plate parking is available.
Disabled and public parking is available in the underground parkade and at designated surface stalls.  Pay per plate parking is available.
 
EMAIL
VIRTUAL APPOINTMENT INFORMATION
Virtual appointments may be available.
Virtual appointments may be available.
 
PARKING MAP
 
WHEELCHAIR ACCESSIBILITY
Yes

Accessible and public parking are available on designated surface and underground parking stalls.

Pay by plate parking is available.


The primary purpose of the All Locations list is to let the user easily access any location of a healthcare service without going back to the main search screen.

The locations listed have 3 background colors:
  • Green means the healthcare service@location has referral information attached to it.
  • Brown means the healthcare service@location never had referral information attached to it, or it has unpublished referral information.
  • Red means
    • IA changed the healthcare service@location's status to something other than Current
    • It was deleted if it is an ARD healthcare service@location.
Green  and Brown are always at the top of the list. These are the Healthcare Service@Locations with the status of Current.
The Red list at the bottom consists of non-current Healthcare Service@locations that once had Published referral information in the ARD.
If the referral information was never published in ARD the Healthcare Service@location will not show in the Red list.

The secondary purpose of the All Locations list is to allow ARD Administrators to recover (copy) referral information from the non-current Healthcare Service@Locations to ones that are current.

Common Scenario:
A Healthcare Service moves from one location to another. In this case the IA Healthcare Service@Location record will be made defunct (non-current) and a new Healthcare Service@Location record will be created with a current status. In this scenario the captured referral guidelines in ARD can become "orphaned" as they are not attached to any current IA healthcare service.

Categories of non-current or orphaned referral guidelines: INDIVIDUAL and COMMON.
The REFERRAL GUIDELINES section of the profile has the prefix INDIVIDUAL or COMMON to help you choose the method below when transferring referral guidelines from a non-current Healthcare Service@Location to a current healthcare service@location.

Individual referral process
  1. Click on a non-current (Red) Healthcare Service@Location at the bottom of the All Locations list.
  2. The non-current referral info is displayed with the link Copy this Referral Process to another Healthcare Service@Location link on the upper right hand corner. Click on the copy link.
  3. Choose a current location (Green or Brown) from the All Locations list. This will be the Healthcare Service@Location you are pasting the referral info into.
  4. The system will display the Edit Referral Info screen populated with the referral info from the non-current Healthcare Service@Location you viewed in the first step.
  5. Click Save and the referral info is transferred from the non-current Healthcare Service@Location to the current one.
  6. Repeat these steps for each Healthcare Service@Location that needs attention.

Common referral process - 2 sub cases.
Case 1: At least 1 current Healthcare Service@Location with common referral info is with current status for this healthcare service; One or more Healthcare Healthcare Service@Locations where replaced by new one.
  1. Click on any current Healthcare Service@Location whether it has referral info (Green) or not (Brown).
  2. The healthcare service location opens in the Edit Referral Info screen populated with the current common referral info.
  3. Save it. 
  4. All locations will be updated with the common referral information, including all the locations that don't have referral info yet (Brown). The non-current referrals (Red) will also be updated.
Case 2:  All Healthcare Healthcare Service@Locations for a healthcare service are set to a non-current status and replaced by new ones. In this case there is no current additional referral info to copy from, so the only alternative is to pick up the non-current common referral process (Red). Follow the steps described in the section Individual Referral Process above to copy/paste the non-current common referral info to the current healthcare service locations.
Generally we want to replicate current common referral info to new or replaced healthcare service locations. We only resort to copying non-current common referral info if there is no other option.

Remember: Some fields can be location specific with the common referral process:
Parking Instructions, Directions, Parking Map, Wait Time, Referral Phone or Referral Fax.
To update these items you have to edit each Healthcare Service@Location separately.

ADDITONAL NOTES:
  • The info icon after the All Locations drop down will be visible to ARD Administrators.
  • The system doesn't allow you to copy referral information from one non-current Healthcare Service@Location to another.

 

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